People keep telling me
"It'll get better in time
But why can't they see"
That I'm really not "fine"
Who are you to talk
You don't don't what it's like
To be in almost endless pain
For the majority of your life
Until you walk in my shoes
You won't know what I feel
Until you battle this pain to
You won't know how I deal
You think I'm joking about agony
But you won't know how much it's real
Until you walk in my shoes
You won't know how I feel.
agony Chronic pain eveeyones different no diagnosis so no help one persons battle one viewpoint pain pain with no end physical pain till it happens to you
I was 7 when atypical neck spasms started funilly enough. Since then everything continued go down hill haha.
Just trying push for a diagnosis so I can find out if it can be helped, treated or cured... Until then it's trying to learn ways to cope or keep as optimistic as possible till then.
With this poem I wanted to express that sometimes we need to be understood, not to be told it will be fine. Especially if we may never be rid of the pain, in that case we would have to come to terms with the fact that this is life and what to expect.
I wish eveey one the best and thank you for your comments.
Currently having a very severe form of my torticollis (where neck locks against shoulder head tilted to one side chin facing other) extremely the most painful affliction I have. So this poem stemmed from that I guess. Fingers crossed in 3-5 days I'll be battling my usual chronic pain rather than that plus the worst. It's manageable dealing with pains I can become used to haha ?
Keep fighting keep writing.. Hugs ?
Haley my troubles started when 7 years old Cronic migraines eredatory cardiomyopathy, 3 boys with it , breast cancer,crones, lymphodema in my legs and side . My mum had elzheimers for 25 years I’m now having trouble with my bladder and bits but I’m still fighting im 73 and writing helps me through lots of love Wendy.
This is more than just writing poetry ?
<Deleted User> (18118)
Thu 16th Aug 2018 20:41
Powerful, insightful.
Hannah
Hayley when you have chronic pain you learn to live with it you never look ill and always try to carry on smiling people don’t think there is anything wrong until it happens to them keep writing it gives you other things to think about love Wendy x
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Hugh
Fri 24th Aug 2018 14:43
Your writing transmits the agony of your pain perfectly.It is sad to read but also a pleasure and a vivid , intelligent insight into what its like. Well done keep up the good work.